PERSONA DANCING ALL OVER MY SOUL
"I generally just tumble around."
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I Need to Follow More People

I’m only following like 120 people and I need more non-fandom content on my dash. I mean, if you post fandom stuff that’s okay, I just need something to break up the Undertale revolution. :’D

I want to check out and maybe talk to more spoonies, non-binary people, and so on. Basically I’ll just list what I’m looking for- feel free to reblog as a signal boost, just tag it as ‘signal boost’. Tag otherwise or don’t tag and I’ll go check your blog! 

Looking For People Who Are or Who Blog About:

  • Spoonies/Chronic Illness ((All kinds, but narcolepsy, cataplexy, and chronic pain specifically are relevant to me.))
  • Transgender/Nonbinary People
  • Neuroatypical People ((Again, all kinds, but the ones specific to me are BPD, OCD, PTSD, GAD, and Depression))
  • College Students ((I just started college and I just keep blogging about my experience and would follow people who blog about their, too!))

So, if you’re any/all of the above, hit me up with a reblog! Mention in the tags which apply to you, and if you’re just boosting, tag as signal boost.

Today I decide to try and explain the concept of spoons to non-spoonies. Fellow spoonies, let me know if you think this was an adequate description? If so, pass this around. Use it if you want- whatever helps get more people in the know, you know? 

~Follow me on the tumbles/Youtube and affirm my need to be an awkward disabled queer blogger.~

nonbinaryprincessleia asks:
Tdfw you have heart condition so you cant walk for long/get very tired and when ur walking with your friends you need to slow down and you think ur nuisance even though they have said its okay and they know u need to rest and its fine

Me: //wakes up shaking//
Me: Oh cool it's gonna be one of those kinds of days I guess.
Me: //suffers//
TFW you haven’t even gotten out of bed yet but you’re already low on spoons.

TFW you haven’t even gotten out of bed yet but you’re already low on spoons.

ive-lost-my-spoons:
“ chronic-illness-cat:
“ [picture of a Siamese cat’s head against a triangle-sectioned background with many shades of blue. Top line of text reads: Too tired to stay awake. In too much pain to sleep. || Bottom line of text reads:...

ive-lost-my-spoons:

chronic-illness-cat:

[picture of a Siamese cat’s head against a triangle-sectioned background with many shades of blue. Top line of text reads: Too tired to stay awake. In too much pain to sleep. || Bottom line of text reads: CRY]

Me right now

I had a sleep attack in the office at work. Everyone just thought I was taking a nap- luckily I was sitting but the way that I fell, my neck landed on the edge of the table. It’s a pretty sharp edge, and I think I was sleeping for arpund fifteen...

I had a sleep attack in the office at work. Everyone just thought I was taking a nap- luckily I was sitting but the way that I fell, my neck landed on the edge of the table. It’s a pretty sharp edge, and I think I was sleeping for arpund fifteen minutes. It hurts so bad to swallow, my head is pounding. I don’t know how I was breathing or if I was getting enough oxygen. I don’t know for sure but I think every time I swallowed, my neck pressed further into the edge of the counter. I’m so sick of being sick.

I actually woke up when my alarm went off! I’m trying to get used to getting up a little earlier- I’ve been sleeping until 11 or noon lately, so I tried waking up at 10 for a while, and now I’ve gotten to 9:30. I want to eventually get to 8:30 before the school year starts!

I’m not sure if I already uploaded a pic, but I got my medical ID bracelet fixed- it was way too big, and when my dad tweaked it he loosened the clap to much and it kept coming undone. The local jeweler fixed it for free,...

I’m not sure if I already uploaded a pic, but I got my medical ID bracelet fixed- it was way too big, and when my dad tweaked it he loosened the clap to much and it kept coming undone. The local jeweler fixed it for free, though!

Text:

NARCOLEPSY

DON’T CALL 911

UNLESS HURT

FROM FALLING

angxlbaby:
“ ♡
”

It really means a lot to me when people put up with my memory problems. It really frustrates me and I hate it- I used to have such a sharp memory but ever since my narcolepsy flared up I’m constantly in a memory fog. I’m honestly so frustrated I want to cry; the reassurance and patience and help is such a help. Thank you, everyone.

Me: Mom, I sorted out the clothes like you wanted me to and I even started on the books and DVDs!
Mom: So what are you going to do now?
Me: Huh? Oh, take a nap. Maybe play some video games.
Mom: You should go for a walk.
Me: I'm really tired I mean I already cleaned-
Mom: Yeah but that's not much you weren't really moving except between the rooms. Go for a walk.
Me: ...... //looks at spoons// //running low//
Mom: //looks at me expectantly// You can't just play video games all day.
Me: ...? I haven't played video games at all today?
Mom: You need to do something productive.
Me: ???? I did????
Mom: That was hardly anything.
Me: ...............
Achievement Unlocked: Got Dressed!
Now to go eat breakfast, and hopefully start packing for college. ouo
They//He

Achievement Unlocked: Got Dressed!

Now to go eat breakfast, and hopefully start packing for college. ouo

They//He

sophaldred:
“ thatnewkindoffamous:
“ narcissiscord:
“ over fifty thousand unironic, uncritical reblogs. a handy reminder that neurotypicals don’t want to accomodate you or stop treating you as abnormal. fuckers.
”
Speaking as a sufferer of...

sophaldred:

thatnewkindoffamous:

narcissiscord:

over fifty thousand unironic, uncritical reblogs. a handy reminder that neurotypicals don’t want to accomodate you or stop treating you as abnormal. fuckers.

Speaking as a sufferer of depression/anxiety:
It’s unnecessary and attention-seeking. Get over yourself

your comment is entirely unnecessary 

It’s actually useful; it’s a way of letting people know so they can better accommodate and understand you. 

Imagine This: What if I didn’t tell anyone about my narcolepsy, and instead I let them panic and worry when I have a sleep attack? No? That sounds like a bad idea? Yeah, it is a bad idea that endangers myself and causes unnecessary stress for those around me because they don’t know and can’t help me because of it.

The same is true for mental illness.

I also have OCD, which I list in my profile. It lets people know there’s a reason for things I do that could be misinterpreted ((I like almost every post, even things for fandoms I’m not in or depressing personal posts; I complain about things that trigger my OCD and could come as rude if the context is not there; I am a generally paranoid person that has to do things a certain way, etc.)). It provides context that will help people to better understand me and for me to interact with others better.

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