PERSONA DANCING ALL OVER MY SOUL
"I generally just tumble around."

If you have a physical disability, please consider giving me 5 minutes of your time to contribute to my research!

I was thinking about the impacts of disability on aspects of life and sense of self, and because I become dedicated to answering questions that enter my brain, I’m doing a personal research project regarding disabled people and would appreciate if any of you would be willing to participate! It will take 5 minutes of your time to fill out and I’ll analyze the data and release a report once I receive enough responses.

https://goo.gl/forms/au8g9sz9NKpF0cjB2

Please reblog this; I’d like to get a decent sample size to ensure significant data instead of an analysis of a few isolated cases.

Things people say when they find out I have a chronic illness

Person A: You need to get out more.
Person B: Are you getting enough sleep?
Person C: You sleep too much.
Person D: You don't look sick.
Person E: Oh, I get that too.
Person F: Have you tried *blank*?
Person G: You take too many medications.
Person H: You're just stressed.
Person I: I wish I didn't have to work.
Person J: It could be worse.
Person K: Just push through it.
Person L: You should try the *blank* diet.
Person M: You should be better by now.
Person N: Yesterday you were able to do *blank*, why can't you today?
Person O: I wish I had time to nap.
Person P: You need to exercise.
Person Q: You should stop *blank*.
Person R: Positive thinking!
Person S: Pray. If that doesn't work, you're clearly not right with God.
Person T: You have this because *blank*.
Person U: Doctor Oz says...
Person V: I've never heard of that. Are you sure that's real?
Person W: You just want attention.
Person X: My friend was cured by *blank*.
Person Y: You're too young/old to have this.
Person Z: YOGA CURES EVERYTHING! DO YOGA! OMG YOGA!

“You shouldn’t drink so much caffeine, it’s terrible for you!”

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Originally posted by dexterfuckingmorgan

Ah, yes, let me abruptly stop one of my sources of functioning, putting myself in the position for withdrawal migraines and excessive daytime sleepiness at full force. I wasn’t aware you were a doctor, but clearly you seem to know my medical situation and the best advice for me personally.

Bonus: “You wouldn’t need the caffeine if you had better sleeping habits!”

@ my followers with chronic pain

If you can at all help it, please do NOT take more than the recommended dose of over-the-counter ((OTC)) painkillers. I know that OTC painkillers are not particularly harmful nor addictive, though the a persistent and high dose can be harmful in the long run. Your stomach, liver, and kidneys can be seriously damaged by long-term use of painkillers, even at the recommended dose if it’s too often that you take it. Also, while I said that OTC painkillers aren’t addictive ((which is technically true)), they can create a dependency that will lead to much more severe pain unless the recipient keeps taking more frequent and stronger doses.

It’s a catch-22, really, and sometimes there is no other feasible option. I want to warn you all, though, in case you haven’t gotten to this point yet. I’ve been taking OTC painkillers daily for years now, and it’s at the point where I can’t go to class or leave the house without taking it. The dependency my body has developed causes me to have headaches even worse than the migraines I take painkillers to control in the first place. It’s a shitty position to be in, because I need to keep taking them to be able to function, but the more I take them, the less healthy it is to take them, and so on in the cycle.

TL;DR Please take OTC painkillers seriously. They are not a highly-controlled substance or prescription drug, but like all chemicals and drugs they do come with their effects that you should be aware of.

Pro Tip for When You Dispose of Pill Bottles

Scratching off the label is tedious ((especially when you have short ass fingernails)), so take a black Sharpie and black out your name, the medication name, and any info about the doctor/prescriber. That way if someone gets their hands on it, they don’t have your information.

To My Spoonie Followers:

Pokemon Go has been a fantastic tool for many people, but remember to still look out for yourself even though it’s a hella fun game. I’ve been having to step back and keep tabs on myself to make sure I don’t over-exert with the walking around, even though I just want to keep going and catch them all…. save your spoons for what you need to do, and only go as far as you can as you’re enjoying the game, okay? //thumbs up//

So my girlfriend and I are tidying up the apartment since we’re having guests over tomorrow, and it’s kind of a lot to do. She keeps making sure I pause to take breaks, though, so I don’t overdo it and cause my back pain to flare up too bad. I often get carried away even when I know better, so I’m thankful I have a partner who looks out for me and helps me remember to respect my limits. 

#chronicpain
I’ve got these menthol patches plastered on my lower back, neck, shoulders, thighs, and arms. Yay.

#chronicpain

I’ve got these menthol patches plastered on my lower back, neck, shoulders, thighs, and arms. Yay.

I took a piping hot bath with a bubble bar and some bath oil that has menthol in it. That helped numb my body down. I’m going to use a massage bar to put more soothing oils on my bod, and invest in a heating pad and icy hot with my next payment.

Chronic Pain Be a Bitch

I’m in so much pain right now– my back and shoulders have been getting worse. I had to lug a 35 lb bag from my apartment to my class, then back… because of a mandatory assignment where we needed to cook two dishes for the entire class. 

I’m laying back and trying to not hate everything. I can’t afford anything I need for pain relief. I’m broke. I’m going to be an asshole and say my PayPal is jram1996@gmail.com, but I honestly don’t expect anything. I also have an Amazon wishlist of pain relief things, though ((again)) I don’t expect anything. I mostly just wanted to complain while I’m bedridden.

Did you remember to…

-Eat something

-Take your meds

-Set your alarm

-Practice self-care

You’re doing great, you know? Keep on keepin’ on, because you’re a star.

Me: Boy howdy today was, in fact, a day if I ever did see one.
Friend: What happened?
Me: Nothing, I'm just at a point in my life where simply existing is an exhausting task.

EMERGENCY COMMISSIONS

justaprinceofthegalaxy:

My commissions price list is now updated, so click here to check out the pull page on my blog!

I have commissions over and priced VERY low in hopes that I can gain some clients. I am currently living alone, save for my service animal. I am very ill both physically and mentally, to the point where medications alone cost me $100/month. My parents give me a monthly budget that helps a lot, but between medications, groceries, school supplies, pet supplies, other necessities, therapy, co-pays… you get the picture. It adds up quickly.

I recently contracted a virus that left me so ill that I was bound to my apartment for two weeks; this caused me to lose my job, which was what kept me able to afford my monthly expenses.

I am best contacted at jram1996@gmail.com.

Prices:

-Digital Sketch $3 ((+$2 for each additional character))*

-Digital Colored Sketch $6 ((+$4 for each additional character))*

-Digital Colored & Shaded Sketch $9 ((+$6 for each additional character))

*Digital sketches will have the blue lines removed; I simply don’t when doing personal projects. Similarly, all examples that are colored are shaded, as they were made for personal projects.

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Now, for some technical details:

-All payments must be sent to jram1996@gmail.com via Paypal. I only use Paypal. I prefer that half of the price be sent before I begin the commission ((after I give you the confirmed price)), and the other half after I finish, before I sent it to you.

-Things I will NOT draw: Porn, Excess Gore ((feel free to ask if you think your request may be considered excess)), Offensive Material ((racist, sexist, ableist, etc.)), and Complex Animals/Creatures ((I have included the dragon example to show my level of ability with non-human drawings)).

-In terms of backgrounds, I will do solid colors and textures/gradients/pre-made backgrounds. I am not confident in my ability to make acceptable backgrounds of my own design, and thus ask that if you do not want a plain background, that you suggest an overlay or gradient/pattern background. Thanks!

Any and all commissions are extremely appreciated- if that’s not feasible for you, even a signal boost helps me a LOT.

justaprinceofthegalaxy:

I’ve lowered my commission prices, and have plenty of slots open!

I’m hoping to be commissioned by anyone wanting a neat-o colorful sketch of whatever character(s) they want; being disabled, queer, and in college… life is both stressful and expensive.

Prices:

Basic Sketch :: $5 ((+$3 for each additional character))

Colored Sketch :; $10 ((+$6 for each additional character))*

Colored and Shaded Sketch :: $15 ((+$8 for each additional character))

All payments must be made with PayPal, please.

Frankly, I can barely afford what I need. My work hours are very limited because I’m a student, my medications are $100 for just a month’s supply, I have a service dog and of course it costs money to take care of her- I could go on but I think I’ve made the point. Basically, finances are a huge source of stress.

Because I’m so busy, I am currently only offering sketches, but they can be lineart, colored, or shaded. I’ll put examples down below, and if you’re interested, either message me on tumblr or email me at jram1996@gmail.com.

Thank you so much to everyone who gives me business and signal boosts my services!

UPDATE: Please, PLEASE signal boost this, even if you can’t commission me. I lost my job today; I had to go to the ER and ended up missing two weeks, and they fired me for unreliability, and MIGHT hire be again in Spring quarter, but that’s three months away. I now have no income. I am given a monthly budget from my parents but it’s just not enough for medications, co-pays, therapy, groceries, taking care of my dog– I just don’t know what to do. I’m absolutely desperate and implore people to reblog this and consider commissioning me.

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